In 2020, five ECU members (Federconsumatori Piemonte in Italy, Consumer Defence Association of Moravia and Silesia, Union of Working Consumers of Greece, Lithuanian National Consumer Federation and Association of Consumer Organizations in Slovakia) accepted the European Commissions call for Erasmus + (no. Motivate the HD community to take part in research and trials. But a new poll revealed little support for heat . In the European region, HAI has grown to become a preeminent voice on pharmaceutical policy discussions. A world where people with PWS and their families receive the services and support they need to fulfil their potential and achieve their goals. Was the discussion fruitful? Who we are | BEUC Questo sito utilizza i cookie per fornire la migliore esperienza di navigazione possibile. BEUC represents its member organisations, national consumer groups, to the EU institutions. With over 450 members, we represent all 27 European Union Member States and non-European countries. BEUC - The European Consumer Organisation 7. Fernndez Perez Do you want send us your opinions and impressions on the site or on the European world of consumerism? BRUSSELS (Reuters) - The European Consumer Organisation (BEUC) has joined the chorus of concern about ChatGPT and other artificial intelligence chatbots, calling on EU consumer . Membership Coordinator. Questo sito si avvale di cookie necessari al funzionamento ed utili alle finalit illustrate nella cookie policy. ECU is a non-governmental and non-for-profit organisation which is independent of industry, commercial and business or other conflicting interests. 4. In 2012, the EU funding represented 43% of the operational BEUC budget. This means giving people access to impartial information, allowing them to have enforceable rights and to be aware of these rights, and providing redress options they can use when something goes wrong. IPWSOs mission is to unite the global PWS community to collectively find solutions to the challenges of the syndrome and to support and advocate for people with PWS and their families, PWS associations, and professionals who work with people with PWS. [4] Many others followed, and the number of lobbyists rose exponentially to the present-day figure of over 15,000. Support establishment of new HD associations where needed. represents the interests of people with dementia and their carers; involves and supports its national member organisations; promotes information exchange between national Alzheimer associations and other stakeholders; carries out comparative surveys across countries; networks with other relevant European organisations. Economic Cooperation Organization In 2010, the operational budget of BEUC amounted to 2.9m. Company profile page for European Consumer Organisation/The including stock price, company news, press releases, executives, board members, and contact information We were founded in 1962 by consumer groups from six Member States of, what was then, the European Economic Community (EEC). As described in its Manifesto PROMOTING SDGs an EU PRIORITY, the Inter-Institutional Group is opened to members of the EU Institutions that have accepted to work together with the civic society to ensure Europe is a global leader in the dissamination, development and implementation of the SDGs. EFNA achieves its objectives and organises activities that contribute to the advancement of neurology and related areas through: The European Foundation for the Care of Newborn Infants (EFCNI) was founded in 2008 and is the first pan-European organisation to represent the interests of preterm and newborn infants and their families. Our acronym originates from our French name, 'Bureau Europen des Unions de Consommateurs'. introducing citations to additional sources, Transatlantic Trade and Investment Partnership, International Consumer Research & Testing, "CESEE: Empowering the consumer movement in Central, Eastern and South-Eastern Europe", https://en.wikipedia.org/w/index.php?title=The_European_Consumer_Organisation&oldid=1148475795, Articles needing additional references from July 2013, All articles needing additional references, Pages using infobox organization with unknown parameters, Creative Commons Attribution-ShareAlike License 4.0, Bulgarian National Association Active Consumers (Aktivni potrebiteli) - BNAAC, Association for the Quality of Life - EKPIZO, National Federation of Associations for Consumer Protection in Hungary - FEOSZ, Orszgos Fogyasztvdelmi Egyeslet - OFE, Latvijas Patrtju intereu aizstvbas asocicija - PIAA, Lietuvos vartotoj organizacij aljansas - LVOA, Union luxembourgeoise des consommateurs - ULC, Consumers' Organisation of Macedonia - OPM, Stowarzyszenie Konsumentw Polskich - SKP, DECO - Associao Portuguesa para a Defesa do Consumidor, Confederacin de consumidores y usuarios CECU, Organizacin de consumidores y usuarios OCU, This page was last edited on 6 April 2023, at 11:33. We represent 45 independent national consumer organisations in Brussels and defend the interests of European consumers. Lithuania: LITHUANIAN CONSUMER ASSOCIATION AE is the umbrella organisation of 31 national Alzheimer associations from 27 European countries. PHA Europe works together with its members to enhance awareness of pulmonary hypertension across Europe, promote optimal standards of care for people living with the disease, ensure the availability of all approved treatments and encourage research for new medicines and therapies. Equitable, speedy and sustainable access to: To engage, inform and empower all people living with and affected by HIV in: The European Cancer Patient Coalition(ECPC) is the largest European non-profit cancer patients association, covering all 27 European Union Member States and non-European countries, with the aim to amplify the voices of cancer patients. At present, 2of these federations (ANEC and BEUC) meet the EU's criteria for fundingand so receive a Commission subsidy to help them carry out their activities. 11. EFA is dedicated to making Europe a place where people with allergy, asthma and COPD: For healthcare professionals and scientists: The European Federation of Neurological Associations (EFNA) was founded in 2001. BEUC represents its members and defends the interests of consumers in the decision process of the Institutions of the European Union, acting as the "consumer voice in Europe". Tel: +32 (0)2 789 24 01. The organisations started to implement common project to promote innovation, exchange of experience and know-how between different types of European organizations. Consumer watchdogs have called for the European Commission to introduce a minimum fine against companies that break EU rules, after Facebook and Twitter failed to reform their user terms. b) the safety and quality of products and services; Our world is in a total transformation and often we dont consider that the elements of nature are not infinite. Spain: ASOCIACION MURCIANA DE CONSUMIDORES Y USURAIOS, CONSUMUR As modern and pragmatic consumers organizations we always look beyond the protection of the status quo for our members and consumers in general, interpreting our mission in a dynamic perspective. On 5 March 2019, ECU organised its launch event, hosted by the former MEP Daniele Viotti at the European Parliament, entitled Towards EU election: Strengthening the European Union for a more effective consumer protection. Alzheimer Europe (AE) was founded in 1990 and represents the interests of people with dementia and their carers in collaboration with its national member organisations. 1. At the international level, BEUC is a member of Consumers International,[5] the global federation of consumer groups. Europa Uomo is only made up of patient-led organisations as members. https://www.youtube.com/user/BEUCandTRACEvideo, https://www.linkedin.com/company/beuc-the-european-consumer-organisation. A world with safe, effective, affordable and quality-assured medicines for everyone, everywhere. TikTok breaching users' rights - European Consumer Organisation Providing easy-to-understand and widely accessible information for those involved. e) the fairness, transparency and equity in contractual relations; We support HD affected by working for better understanding, care and treatment in HD. The European Consumer Centres Network - ECC Net 15.7K . Litigation. EGA has an elected board of nine members, all family members. Supporting national parents' organisations. The EHC represents 45 national patient organisations. Euroconsumers member investigations have found a steady stream of fake reviews on e-commerce sites. [2], BEUC was created on 6 March 1962 by consumer organisations of Belgium, Luxembourg, France, the Netherlands, Italy and Germany. We work closely together with Consumers International to ensure consumers are safe, that markets are fair and benefit from honest relations with businesses and authorities. The European Consumer Organisation: Pioneer in Advocacy and Vicepresident: Franois Bilem 3. As EU umbrella Consumer Association, ECU acts in accordance with European principles and pursues social solidarity and the protection of the rights of consumers and users at national and European level in all areas of their interest, as declared in the Statute of the Association. It is a non-governmental organisation set up to promote gender equity in public health, research and social policies across the Europe. She coordinates and manages BEUC's work in the fields of platform regulation, privacy, data protection, the data economy, telecommunications, cybersecurity, digital health and artificial intelligence. [7][8] Their class action lawsuit against Facebook led to a groundbreaking decision in an Italian regional court on the value of private data.[9]. As for pronunciation, lets just say its a question of consumer choice! 16. The European Consumer Organisation (BEUC) has joined the chorus of concern about ChatGPT and other artificial intelligence chatbots, calling on EU consumer protection agencies to investigate the . Targeted public relations and media work, e.g. Enabling global impact by fostering a lymphoma ecosystem that ensures local change and evidence based action. The great social media crypto con, Today, the European Parliament voted to make sustainable products the norm on the EU market, banning early obsolescence and destruction of unsold, A European Commission proposal published today which should have led to speedier and more effective cross-border enforcement of the EUs signature, The European Commission published an ambitious package of measures today that have the potential to improve consumer conditions in payments and, Sustainable products soon the norm thanks to EU Parliament vote but online sellers off the hook, Need for EU-wide investigation into AdBlue emission-reduction system for cars, New Commission proposal falls short in boosting GDPR enforcement, EU proposals focus on consumer needs for the future of digital payments and finance, One year on from our complaints against Google and its fast track to surveillance, Agricultural agreements cannot be a smokescreen for greenwashing and profiteering. Please note that becoming an eligible organisation does not automatically grant membership to the Patients' and Consumers' Working Party (PCWP). The European Prostate Cancer Coalition (Europa Uomo) is the umbrella organisation of prostate patient organisations in Europe. have the right to best quality of care and safe environment; are actively involved in all decisions influencing their health. Partnering with parents, healthcare professionals, policymakers and other stakeholders. We aim to make consumers confident in the European Single Market. Our acronym originates from our French name, 'Bureau Europen des Unions de Consommateurs'. European Commission Confirms It Is Looking Into Joy-Con Drift Bureau Europen des Unions de Consommateurs (BEUC) EGA serves Gaucher patients globally. Poland: FUNDACJA KUPUJ ODPOWIEDZIALNIE Click below to find out what key stakeholders say about the ECC-Net. Today, BEUC and 23 of its member organisations from 18 countries have filed a complaint to the European Commission and the network of consumer. One goal. Lymphoma Coalition Europe(LCE) is an umbrella organisation of lymphoma member organisations working across Europe, Turkey and Israel. Through its 120 members, AGE network represents more than 40 million senior citizens across the EU. EFCNI's vision is to ensure the best start in life of every baby born. THE EUROPEAN Consumer Organisation found heat pumps can help cut heating bills by a quarter compared with the cost of conventional gas boilers. To improve the quality of life of people living with pain in Europe. Promoting research and providing research support from the patient's perspective to improve prevention, treatment and care, as well as outcomes. It is also active in the Transatlantic Consumer Dialogue (TACD), a forum of US and EU consumer organisations. You travel to any of the other Member States of the European Union (Austria, Belgium, Bulgaria, Croatia, Cyprus, the Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Italy, Latvia, Lithuania, Luxembourg, Malta, the Netherlands, Poland, Portugal, Romania, Slovakia, Slovenia, Spain, Sweden) and associated EEA countries, Norway and Iceland. BEUC was one of the first lobbying organisations to set up base in the European capital in a bid to influence the decision-making process. FIN was founded in 2005. It uses the World Health Organization region to define the European region. We represent national Parkinson's associations in nearly 30 countries across Europe and advocate for the rights and needs of more than 1.2 million people with Parkinson's and their families. Secretary General: Mariano Votta. to inform and educate through improvement of the provision, reliability and quality of information on mental-health problems for patients and the general public, and assisting with the improvement the training, education and understanding of mental illness of health and other professionals; to tackle stigma and discrimination by increase awareness, knowledge and understanding of mental-health problems, and helping to reduce stigma, prejudice, and ignorance in relation to mental-health problems and fight discrimination; to work on patients' rights by focusing on the development and enforcement of rights for people affected by mental-health problems, such as access to appropriate treatment; to work through co-operation, partnerships and capacity building by enabling patient groups to collaborate with health professionals, policymakers, academics, and industry. If you have a consumer problem within the country where you live, please contact one of our members for help. ECU is a constellation of europeans associations wich diffuses and protects consumers rights. Sandrine Carpentier. In 2012, it reached 3,160,000. Consumer surveys and reporting on consumer issues and trends that contribute to policy development. The Transatlantic consumer dialogue (TACD) is a forum that brings togetherEU and US consumer organisations. TIF represents thalassaemia associations, other patient associations and health-related bodies, and individuals from around the world. Our vision is an inclusive society for all ages, based on solidarity and cooperation between generations. Communications Officer. Exchange knowledge and experiences about good practise. In a letter to the European Commission, they, along with other food producers, retailers, public health officials and consumer groups cite research that shows Nutri-Score to be the best-performing . The European Patients' Forum (EPF) is the leading voice of patient organisations in Europe. EFA is aiming to be a powerful European network of allergy, asthma and COPD patients organisations that: advocates at EU level the needs of people with allergy, asthma and COPD; cooperates with healthcare professionals, scientists and other stakeholders / non-governmental organisations (NGOs). A patient is a person with any chronic disease, illness, syndrome, impairment or disability. Information and education on consumer rights and protections under EU law. ECL provides a voice and a forum for cancer leagues to collaborate with their international peers, primarily in the areas of primary and secondary cancer prevention, access to medicines, and patient support. ECU is mandated to represent consumers interests at Union level by organisations in at least half of the Member States and it is active at regional and national level. BEUC was created to promote, defend and represent the interests of European consumers in the elaboration and implementation of EU policies. Eligible patients and consumers organisations - European Medicines Agency Spain: ADICAE CONSUMIDORES CRITICOS, RESPONSABLES Y SOLIDARIOS https://www.youtube.com/user/BEUCandTRACEvideo, https://www.linkedin.com/company/beuc-the-european-consumer-organisation. President: Sergio Veroli The European Consumer Organisation (BEUC) BEUC, the European Consumers' Organisation, is the Brussels-based federation of independent national consumer organisations from all the Member States of the EU and from other European countries. To conduct research and advocacy to advance policies that enable access to medicines and rational medicines use for all people around the world. ELPA represents patients with hepatitis and liver disease and consists of 31 national liver patient associations from 25 countries from all over Europe and the Mediterranian basin (status on October 2019). Hungary: FEBESZ NATIONAL FEDERATION FOR THE PROTECTION OF CONSUMERS AND PATIENTS RIGHTS We're happy that we were able to help you. BEUC is the umbrella group for 46 independent consumer organisations from 32 countries. Click below to see what it takes to become part of our European family on our Careers page. umbrella organisations encompassing a number of smaller or national organisations; organisations with a focus on a specific area. It also regularly organises conferences. Change is never pretty, but were wasting time fighting to delay the inevitable. EMSP's member organisations are active as patient self-help groups, as patient advocates and as promoters of MS research. Senior Advisor - Competition at BEUC - The European Consumer Organisation Brussels Metropolitan Area. Slovakia: ASSOCIATION OF CONSUMER ORGANIZATIONS IN SLOVAKIA Consumer groups across Europe are calling on European consumer authorities to open an EU-wide investigation into AdBlue, in what is likely to be an BEUC is the umbrella group for 45 independent consumer organisations from 31 countries. Oriana Henry. In 2001, the European Extrajudicial Network (EEJ-Net) of information and assistance centres was founded to refer consumer disputes to alternative dispute resolution (ADR) bodies. We support the interests of European consumers every day. to change perceptions, policy and practice in order to improve access to treatment options and care services for people with dementia and their carers. The European region of the International Diabetes Federation European Region (IDF Europe) is one of the seven regions of IDF. Partners - STEP project - Solutions to tackle energy poverty Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or EISMEA. Realising active partnerships with patients' organisations, maximising their impact through capacity building, Advocating internationally with a strong patients' voice on relevant aspects of healthcare policy, with the aim of influencing international, regional and national health agendas and policies, Building cross-sector alliances and working collaboratively with like-minded medical and health professionals, policy makers, academics, researchers and industry representatives. BEUC is an associate member of Consumers International (CI) which defends consumers at the global policy-making level. Our main role is to represent them to the EU institutions and defend the interests of European consumers. This covers a range of topics including competition, consumer rights, digital rights, energy, redress and enforcement, financial services, food, health, safety, sustainability and trade policy. Collaborating on projects to the benefit of the myeloma community. for haemophilia, von Willebrand Disease and other rare bleeding disorders from 27 EU Member States and most Council of Europe countries. ELF covers 40 different disease areas. The TACD is organised by Consumers International, which runs the TACD secretariat, and receives financial and coordination support from the Commission. As of November 2022, ECL represents, supports and unites 31 cancer leagues across 26 countries in the WHO European region, of which 21 are EU Member States. 1,819 Following. Since 1991 IPWSO has supported national Prader-Willi syndrome associations, as well as people with Prader-Willi syndrome, their families and the professionals who work with them. We represent 46 independent national consumer organisations in Brussels and defend the interests of European consumers. All of the listed organisations have been evaluated and confirmed to fulfil the eligibility criteria for working with EMA. euroconsumers Our staff and global network of members and programme partners in 34 countries worldwide, of which 19 are in the EU, share expertise and work to solve medicine access and use issues around the world. The European Consumers Union (ECU) is a European consumer organisation which complies with all of the condition established by EU Institutions. Today, ECU is composed by 23 National Consumer Associations coming from 16 EU Member States plus 1 extra Member EU as ratified in the Paris ECU General Assembly 2018. Are you interested in working for a pan-European organisation with colleagues from different countries and diverse cultures? In 2012, BEUC celebrated its 50th anniversary. Read more. 6. News . Gathering five national consumer organisations and giving voice to a total of more than 1,5 million people in Italy (Altroconsumo), Belgium (Test Aankoop), Spain (OCU), Portugal (DecoProteste) and Brazil (Proteste), Euroconsumers is the world's leading consumer cluster in innovative information, personalised services and defence of consumer rights. A BEUC survey, carried out by Euroconsumers, finds over 2/3 of consumers want the value of their health data reflected in healthcare and medicine prices. to develop and promote long-term partnership; to ensure well defined conditions of partnership. Language links are at the top of the page across from the title. Italy: FEDERCONSUMATORI & FEDERCONSUMATORI PIEMONTE Eight of the organisations represent all three conditions. We lead patient advocacy in Europe providing a cross-disease perspective from a wide patient community to the policy-making process on issues which have a direct impact on patients lives. The Economic Cooperation Organization or ECO is an Asian political and economic intergovernmental organization that was founded in 1985 in Tehran by the leaders of Iran, Pakistan, and Turkey.It provides a platform to discuss ways to improve development and promote trade and investment opportunities. The World Duchenne Organization (UPPMD) is a worldwide organisation dedicated to finding a cure and viable treatments for Duchenne muscular dystrophy (DMD), to promoting good standards of care, and to informing parents around the globe. GlobalSkins mission is to lead a global movement for people living with dermatological conditions by: Health Action International (HAI) is a non-profit, independent NGO network founded in 1981, working to ensure affordable access to medicines and improve their rational use through research excellence and evidence-based advocacy. Since more than 30 years, LupusEuropeis the European umbrella organisation that brings together national lupus patient self-help organisations from across Europe, representing a combined individual membership of over 30,000 patients. GAMIAN-Europe, a patient-driven pan-European organisation, represents the interests of people affected by mental health illness and advocates for their rights. Our 29 European Consumer Centres (ECCs) empower consumers to know their rights and fully benefit from the opportunities the Single Market offers. ELPA's vision is for early diagnosis of patients with hepatitis and liver disease across Europe, having access to high-quality care and treatment with disparity reduced. The organisations work is divided into 8 priority areas: consumer rights and enforcement, digital rights, energy, financial services, food, health, safety & sustainability. Actionable in follow-up for sure. The European Consumer Organisation (BEUC (/bk/[1]), from the French name Bureau Europen des Unions de Consommateurs, "European Bureau of Consumers' Unions") is an umbrella consumers' group, founded in 1962. collaborating with communities of interest. It organises Together we are stronger meetings aiming at advocacy and awareness-building for people with diabetes and all those who care about them. to work for all prostate cancer patients in Europe, under one umbrella, for better treatment, care and quality of life; to support national organisations to deliver services effectively, efficiently and in line with national priorities; to confirm Europa Uomo as the representative European voice of all prostate cancer patients support groups. Bureau Europen des Unions de Consommateurs ( BEUC) was created on 6 March 1962 by the consumer organisations of Belgium, Luxembourg, France, the Netherlands, Italy and Germany. Encouraging the growth of new myeloma patient groups throughout Europe, especially in regions and countries where none currently exist. Neither the European Union nor the granting authority can be held responsible for them. United to create a better world for all affected by SMA.All together. While we keep on strengthening our private enforcement activities and intervene whenever there are clear and unacceptable violations - as in the different coordinated class actions, lodged in all the EU countries of our Group in the last years - we are also reinforcing our capacity to enter in collaboration with major global brands helping them to raise the bar especially in the digital economy, to design better products and services and further improve consumer empowerment. Be a strong and clear patient advocate voice. Jasper Dober (Consumer Rights) Communications Officer. LIABILITY BEUC does not deal with consumers complaints as it is the role of its national member organisations. IBE has a vision of the world where everywhere fear and ignorance about epilepsy are replaced by understanding and care. That people with Parkinson's and their families have access to the highest standards of treatment, support and care they need to live a full and comfortable life. Consumer Protection: Organizations Italy: MOVIMENTO CONSUMATORI Stroke Alliance for Europe, the European Parkinson's Disease Association and the European Headache Alliance) to small (e.g. We are driven to contribute to change or create EU and national laws to improve cancer patients outcomes by empowering them to become the co-creators of their own health. Thats why the Euroconsumers Group stepped into a more agile operating model which can deliver faster decisions, focusing on: stronger strategic thinking; offer support services to the markets; put forward best practices and expertise sharing; and maintain economies of scale. Cezara Popovici. Our mission is to be the voice of lupus in Europe and empower the national organisations for people living with lupus. BEUC is acknowledged as a trustworthy representative by decision-makers, thanks in particular to the collective skills, knowledge and expertise of our member organisations. Exchanging information, education and best practice to build sustainability and capacity and facilitate effective group development. g) the provision of public services according to standards of quality and efficiency. 5. AGE network seeks to promote older people's rights at EU and international levels, to combat ageism and support a dignified, active and socially included old age for all. It is the umbrella association of European allergy, asthma and chronic-obstructive-pulmonary-disease (COPD) patient associations in countries that represents its members at a European level. European Association for Coordinating Consumer Representation in Standardisation (ANEC), Confederation of Family Organisations in the EU (COFACE), European Community of Consumer Cooperatives (Euro Coop).
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